Showing posts with label anecdotal evidence. Show all posts
Showing posts with label anecdotal evidence. Show all posts

Saturday, December 17, 2011

Day 5: Gluten Free in Japan

Day 5 and I will spare you the gruesome details, but my digestion is working at 95% normal :D

The cracks in my tongue are less, which means my gut is also doing better at getting essential nutrients!

Totally calm and in charge at today's classes! Even though it's Saturday and I was at the school from 12 to 8.

Also able to down a bunch of dark chocolate today- which is rich in iron and certain polyphenols and antioxidants. Of course, it's free of most allergens EXCEPT had soy... which I may or may not be slightly allergic to. Apparently that doesn't compare to wheat or gluten.

And I feel like I have so much more free time, energy, and drive now that the stomach pain is lifted off my shoulders AND I didn't have to go to the clinic to get a stomach camera-ing done. And all I had to do was go without wheat in my food. So that's easier said than done... everything has to be cooked at home from scratch and without wheat and without certain exciting things like soy sauce. But had some pretty good no soy-sauce Korean bulgogi recently. Maybe I'll be able to have smidges of soy sauce and kim ch'i again soon...

Now that I feel good I can start putting together pictures and stories about my November-December travels with Mumsie!

Wednesday, April 13, 2011

One More Girl Documentary Will Be Made!

http://www.prlog.org/11435516-funded-one-more-girl-exposing-the-other-side-of-mercks-one-less-hpv-campaign.html

The PR Release link is above.

People believe enough in the "anecdotal evidence" to back this film. So if you are a mother, or a daughter, or a woman affected by this vaccine they are now looking for females to show in the documentary. I would, although my own experience is with only one dose of the vaccine and my side effects relatively mild. Thank goodness I realized something was rotten with the vaccine and didn't accept any subsequent doses. I hope girls will continue to refuse this vaccine and/or subsequent doses if they are experiencing side effects so they do not have to experience what the worst affected have.

I'm looking forward to the documentary.

Thursday, October 28, 2010

Been a While, Down For the Count

Ladies and Germs.

It's been a while since I've been in. Combination of good and bad. Made it out of summer term with A- in both sections of organic chemistry laboratory. Summer brought a respite from my symptoms. I think it's because I wasn't taking on as much as the summer before (when I was doing many many classes and also volunteer teaching a Japanese class.) All those are things I love to do but my body just doesn't take it that well I think.

I would first like to tell a short story, naw, make it a long story.

In June 2007 I was about to graduate from high school, and I'd recently been informed that I received a Mazda Foundation Scholarship to go to Japan for 6 weeks. At the same time, my grandfather was passing away.

Before that trip, I went for a sayonara physicial at my pediatrician. Before this time I went to the doctor maybe once, twice a year. I was healthy, with the occasional ear infection as I'd always had some drainage problems. At that physical I was given a clean bill of health, expressed no complaints, and then they brought in the vacs.

This included Gardasil, Menactra, and a hepatitis vaccine. I'd been coming off a cold and my mother asked "is it safe that these be administered when she is coming off a cold?" Without batting an eye they said "yes" and in complete blind faith I accepted the vaccinations: I'd never been squeamish about them.

I don't have the exact date, but I think it was about a week or less before graduation. I remained sick... my cold didn't let up. Graduation day I was hit with the most profound, odd, and frightening feeling I'd ever had in my life. I needed to use the toilet and I felt hot and restless. I remember asking my mother if I should go to the emergency room. She looked serious, and being a nurse, she suspected a vaccine reaction but did not tell me at that time. I was determined to go to my graduation, but was feeling restless and on edge the whole time, kind of out of touch and focus. And it was a blur. Like the intensity I felt life with had been drained away and everything had become less. But I made it through and went to a party with my friends. And for the most part I felt things went back to normal after that.

I had a little nausea in the mean time, digestive system wasn't quite right, attributed it to the excitement of getting to go to Japan again. I'd been to Japan a year before and truly had the most beautiful moment of my life, besides those one shares with family. Both were exchange immersion programs and Japan was where my passions and my talents were. I participated in the state-wide language speech competitions (took home 5th/35 in Division 1, didn't place in Division 2 but did well), laughed hard and played hard with my friends, ate junk food like crazy... did school musicals. I was a normal teen.

And then I was off for an orientation outside of San Francisco then Tokyo-bound but two days later. Felt a little weird, attributed it to the tired feeling you get when traveling. Couldn't sleep well but attributed it to jet-lag. Felt extremely nervous but attributed it to excited energy when I was riding the shinkansen to meet my host family in Hiroshima. For the first few days... being swept through entering a new home, meeting neighbors, introducing myself at school, meeting new friends... things went alright.

However, there was an escalation of symptoms which has not since decreased however there tend to be flares and remissions of varying lengths. These includes:
-Chest tightness/difficulty breathing
-Rapid heart rate, including at rest
-Dizziness
-Feeling strange, difficulty falling asleep: restless, hot feeling, great sense of unease with urge to move
-Nausea
-Irritable Bowel
_______________
Toward the end of my stay, the symptoms progressed to include
-Strange feeling on face, around eye (right side worse)
-Hair loss
-Sense that something was wrong with eyes, jumpy (although now it includes floaters (started after taking Celexa)... could've just been the progression of whatever is going on...

How I survived, I don't know. The memories are still fond and I still yearn for the day that I may be able to go back to Japan, such as to teach English. Dealing with these symptoms made me desperately want to become a physician or naturopath doing research on problems such as these (which I believe was set off by the vaccine, regardless of whether it was an underlying issue... I truly believe that it would not be as severe as it is if I had never received the Gardasil vaccine, especially in conjunction with Menactra and Hepatitis B vaccine. I survived climbing up the steep staircase to put the clothes on the line and being attacked by wasps on the little balcony where the clothes were hung ;)

I do believe a lot of this I have documented in a journal I kept during my journey. I'll make a mental note that this is something I can show to doctors while looking for help. So that is a background story, but I'm also going to publish a blog of everything I have experienced since being vaccinated in June 2006 and if I am able to obtain specifics I will provide them. I will provide a blog detailing tests I have had done (good now that I'm having a full flare up of the symptoms) so that I will have everything in my mind and I'll try to make other posts more or less organized (I may use them to go to my appointments.)

And then when I get all this background information out of the way I can start writing about the day to day.